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Anyone else suffering with Spondyloepiphyseal Dysplasia

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Spartacus
Posts: 4
Joined: 1 month ago

Anyone else suffering with Spondyloepiphyseal Dysplasia

Post by Spartacus » 3 weeks ago

Hello,
I am from india and i got diagnosed with Spondyloepiphyseal Dysplasia. I am 22, and if you guys know anout SEDC, i have had it since birth. I would very much like to know if there is anyone with the same disorder and if yes, how can we manage it and would joints replacement help.

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