Lonewolf: Daniel-where is Laura?

Mooooooo: she will be here momentarily

Lonewolf: ok we'll wait

Lonewolf: there she is

WonderW: hi guys

Lonewolf: so you have already started it?

Lonewolf: Hello everyone

Lonewolf: Tonight we have a guest speaker

Kark: hello

Lonewolf: Our own Wonder Woman

WonderW: , tonight's meeting is on Cerebral Palsy, which is my disability

Lonewolf: I have responses to the questions from Lorraine Lavorata and from my son

WonderW: cool, that should help

Lonewolf: anyone that is a slow typer please add st to your nic

Lonewolf: for a statement type !

Lonewolf: for a question type ?

Lonewolf: and WW will call on you

Lonewolf: any questions?

WonderW: brb

WonderW: sorry

Lonewolf: ok Laura I'll turn it over to you

Lonewolf: oops

WonderW: really late attendant

Lonewolf: whwnever you are ready

Mooooooo: attendant was supposed to be there an hour ago

wacky-ST: Then she doesnt attend to her job much does she?

WonderW: ok, sorry

Mooooooo: interviewing

wacky-ST: understand

Lonewolf: go ahead ww

WonderW: anyway, CP is caused by damage to the brain before or during birth

WonderW: it is basically a lack of oxygen to the brain

atrpilot: were you born with it or did you get it at a later time? STa

wacky-ST: !

WonderW: I was born with it

WonderW: was born two and a half months prematueely

Kark: Do you know what's the most common reason for loss of oxygen to the unborn that causes CP

Lonewolf: ww wacky wants to say something

WonderW: the extent of the damage really depends on where in the brain the damage is

Lonewolf: kark please type ? and ww will call on you

Kark: oh sorry

WonderW: no one really knows, but it can be be caused by birth trauma, Rh negatove blood, or German measles in the mother

WonderW: during pregnancy

HelloKit: !

WonderW: Carly?

WonderW: Brian?

wacky-ST: it (CP) can be acquired at a later date b4 age 5 (i was 3mos old)tho rare it does happen...

camille3: ?

WonderW: true

WonderW: Camille?

HelloKit: just wanted to say the part about german measles is interesting... i hadn't heard that. it's also been known to cause some cases of amc

WonderW: hmm, I didn't know that either

camille3: does it only affect the brain

HelloKit: including mine, most likely

wacky-ST: ?

WonderW: but amc and CP are similae

WonderW: Beian?

wacky-ST: can I inject laura

wacky-ST: ?

WonderW: sure

wacky-ST: interject

WonderW: if you want, you can do the types of CP

Kark: ?

WonderW: which was my next point

WonderW: Karen?

wacky-ST: ok CP affect the motor cnter of the brain can manifest in speech balance and coordination as welll as othe physical areas cognitive skills rarely affected

Kark: how is AMC and CP similae

wacky-ST: i only know 3 types for sure

WonderW: AmC has joint contractures and stiffness, too

anny1: !

WonderW: anny?

anny1: amc and cp are similiar becouse amc can be caused by brain development problem

Kark: really

WonderW: good, thanks

anny1: it's what they told my cause was

anny1: ?

WonderW: my CP is the spastic type, which means that my legs, and to a lesser extent my arms become very stiff and tight

WonderW: anny?

anny1: does cp always involve spasicity?

WonderW: no

WonderW: athetosis is a type which means the muscles are always moving

WonderW: they rarely stop

wacky-ST: there are 4 basic types of CP these are: athetiod (loss of all control characterized by writhing movements) spastic ( laras meniotioned) ataxic (loss of internal balance) and mixed

wacky-ST: I am mixed

Lonewolf: cam did you get your question answered?

camille3: yes

WonderW: that's what ppl usually think of when they think spastic

wacky-ST: combine all four and u have me

WonderW: you are, Brian?

wacky-ST: yup u know that

WonderW: mixed means that a person can have two of the four types

wacky-ST: or more

WonderW: yes

wacky-ST: in any combo

camille3: ?

WonderW: ppl with ataxia can usually walk, but have trouble with balance

WonderW: camille?

camille3: are there meds you can take to help

WonderW: yes, but I've found that thru sometimes work for me and other times not

WonderW: they

Lonewolf: ?

HelloKit: ?

WonderW: Judi?

Lonewolf: Brian you said you developed yuours at 3 mo-from hat?

Lonewolf: what

wacky-ST: in my case I have no sense of balance that is not external, i have extermlely low muscle tone in upper extremities I am hypermobile, I have increased tone in lower makes my legs scissor when I stand or I can over evstend

wacky-ST: i was accidentally suffocated

wacky-ST: or anoxic

WonderW: I had scissor standing too

Lonewolf: IC

WonderW: I had an operation at 4 to correct it

wacky-ST: but i can lock in an over exstension too lars

WonderW: Carly?

HelloKit: i have a friend w/ cp who doesn't have any spasticity or uncontrolled movements... she can walk but very bent over, knees bent, and weak - can't walk for long. would this be ataxia?

WonderW: possibly

wacky-ST: ataxia and athetitosis

wacky-ST: mix

WonderW: how's her balance?

HelloKit: hard to tell, never seen her walk for long

wacky-ST: if knees bent she possibly a diaplegic

wacky-ST: higher tone in legs

WonderW: we should discuss that too

WonderW: CP can be in monoplegia, which is one limb affected, but rare

WonderW: hemiplegia is one side of the body

wacky-ST: no such thing as a CP para tho

Kark: ?

WonderW: quadriplegia, all four limbs

wacky-ST: or diaplegia

HelloKit: she also has cfids and fibromyalgia so hard to tell what goes w/ which

wacky-ST: mainly legs but hands and arms slightly affected but not noticed to untrained eye

WonderW: diplegia is where the arms are much less affected than the legs usually

wacky-ST: oh we fo got one lara

wacky-ST: dble hemi

WonderW: I've heard of spastic paraplegic CP, Brian

wacky-ST: where a person is afected on both side but arms more than legs

WonderW: yeah, thanks

wacky-ST: miss nomer for diaplegia lara I herd it to and asked

WonderW: oh

WonderW: ok

wacky-ST: orthos use that term

wacky-ST: ortho pedist

WonderW: anyone have any ?

Lonewolf: 1. Do you have regular contact with someone with Cerebral Palsy or another

Lonewolf: neurological condition offline?

Lonewolf: How has this impacted you?

wacky-ST: course im not as affected by cp now

wacky-ST: so i donno

Lonewolf: !

anny1: !

HelloKit: !

WonderW: Judi?

WonderW: Carly?

Lonewolf: My son has mild cp

WonderW: everyone?

Lonewolf: we went through a lot of tests and casts and special classes

WonderW: I'm spastic, just speak :)

wacky-ST: !

WonderW: so did I

Lonewolf: he says having cp has made him aggressive

WonderW: yes, Brian?

anny1: i had a good friend in school who has cp and is now a speech therapist

Lonewolf: because he was teased so much grrowing up

Mooooooo: I do!

Mooooooo: :o)

WonderW: :)

wacky-ST: i was told growing up to hide as much as i cld ( i cld freewalk I was shamed to think i was less than .... anyone esle share that?

HelloKit: i of course have the friend i mentioned who unfortunately i don't have much contact with anymore since she's in seattle and i'm in ri... and since moving i now have chris' nephew zack who has cp caused by hydrocephalus

WonderW: wow

Lonewolf: !

HelloKit: he's 6, as of yet nonverbal, nonwalking

WonderW: Judi?

Lonewolf: This is France and I have mild CP so here is my contribution:

Lonewolf: CP is not a disease, it is a condition. I am not sick or contagious,

Lonewolf: I just have impairments.

HelloKit: he's an angel, i love him

Lonewolf: that's lorraine's

confused: Hello

WonderW: cool

WonderW: ok, what are common stereotypes of ppl with CP?

Lonewolf: Yes, myself, I have mild CP and severe neurological

Lonewolf: impairments

Lonewolf: > How has this impacted you?It impaires visual/spatial/perceptual abilities, balance,

Lonewolf: motor skills/coordination and mobility

confused: I wonder if anyone sees this?

Lonewolf: excuse me

WonderW: np

Lonewolf: confused we are in a meeting

Lonewolf: to make a statement type !

WonderW: it impacts me that way too

Lonewolf: to ask a question type?

confused: I'm sorry I just didn't know if I made okay.

Lonewolf: no excess chat

wacky-ST: !

WonderW: Brian?

wacky-ST: i have no depth perception have to use cane in unfamiliar spots

wacky-ST: u know a white one

WonderW: yep :)

Lonewolf: !

WonderW: I have a hard time judging how far away or close things are

Lonewolf: Lorainne said That we are retarded, drunk or slobs. Well I am one of the most

Lonewolf: immaculate meticulous people you will meet and I also have an IQ of

Lonewolf: 148 and I am a college teacher and doctoral student

Lonewolf: ?

WonderW: way to go!

WonderW: France?

wacky-ST: !

WonderW: Brian?

wacky-ST: ppl like to think i am forever 5

wacky-ST: i read at a 12 grade level at 9

confused: ?

WonderW: ppl do that with me too

wacky-ST: and have iq of 130 hows that for a mental defective?

WonderW: sometimes it's hard not to believe it

WonderW: confused?

WonderW: exactly

confused: Yes, I have a question.

WonderW: go ahead

confused: I am trying to do some research for a college class and I feel like I keep hitting a dead-end...

WonderW: on something related to CP?

Lonewolf: ?

WonderW: Judi?

Lonewolf: I have never made the exact connection between cp and adhd

confused: on something related to disabilities in general..I want to know how ppl feel the Internet helps ppl with disabilities..or if they feel it helps at all.

Lonewolf: confused we are in a meeting you will have to come back later

WonderW: that would be better discussed when the meeting is over

wacky-ST: Ppl w/ CP are at a higher risk of Ld and behavior disorders

Lonewolf: but how so?

WonderW: I have a learning disability, too

WonderW: in math only

wacky-ST: now that one I cant answer

Lonewolf: Stuart did too and I never quite understood

confused: Lonewolf..this is not someone playing around..I understand that you are in a meeting..perhaps you would be kind enough to tell me who can help me with my search..I too am disabled and want to know the answer

wacky-ST: i am dyslexic and adhd

WonderW: I think it just depends on the part of the brain affected

Lonewolf: after the meting confused

Lonewolf: IC

wacky-ST: yep lara

Lonewolf: were you oth aggressive?

Lonewolf: b

WonderW: we're no

WonderW: no

wacky-ST: i am but that i think was cuz i had an older sib

Lonewolf: thanks

wacky-ST: that like to say: you cant do this cuz ur... (whatever her reason was)

wacky-ST: good motovator

WonderW: let's jimp to the question on that Do you think that ppl with CP are more or less likely to be assertive/aggressive?

WonderW: and why

Lonewolf: !

wacky-ST: !

WonderW: Judi?

Lonewolf: Lorraine-to some degree. People with neurological disabilities are the most

Lonewolf: discriminated against especially in employment and have the highest

Lonewolf: unemployment rate so lose assertiveness. I am only able to teach

Lonewolf: college (not a steady income till I complete my doctorate). Most

Lonewolf: neurologically disabled people like me need mobility assistance,

Lonewolf: assistance with problem solving and judgment, motor skills and

Lonewolf: perceptual skills and thus many employers fire them and refuse to

Lonewolf: accommodate them. In college t

Lonewolf: In college teaching these problems do not arise for

Lonewolf: me, but in all other work they do.

WonderW: that's really true

WonderW: I've found that my perceptual difficulties sometimes cause me to stare ahead

Lonewolf: !

WonderW: and ppl think I'm unaware

WonderW: Judi?

Lonewolf: Stuart's adult response has been to become an aggressive businessman

Lonewolf: as if compensating

WonderW: do you think that might be because he got tired of not being heard?

wacky-ST: i think the asserstion argressive depends on the enviroment one is face with wheter coddled or taugh independence and whether they are allowed to the oppertunity to fail

WonderW: or is it innate, or both?

Lonewolf: not sure

WonderW: I totally agree there, but I think it's also individual response

wacky-ST: i have a story if u can wait its a good example

WonderW: so a mix, as usual

WonderW: ok

Lonewolf: bri?

WonderW: hmmmm

wacky-ST: I was abt 2, my older sis was on the couch watching sat morn cartoons and I wanted up too, try try try as i did I kept falling of the couch couldnt get up there, my dad saw and placed me up there I screamed the only word i cld say that ppl understood NO. got down and kept trying he helped a few more x's but after my continue defiance he gave up and left me a lone. 2 hours later covered in sweat, cartoons over, and much to my si

wacky-ST: sorry for the typos

WonderW: cool, Brian

WonderW: good story, I like it

wacky-ST: been like that my whole life

WonderW: I know :)

WonderW: ok, I have another ?

wacky-ST: why I became a counselor I wanted to be the one helping for a switch

wacky-ST: i gotta jet

WonderW: which is What basis do the stereotypes surrounding CP have in fact, and how can we reduce them?

WonderW: ok

WonderW: we're alm,ost through anyway

WonderW: thanks, Bri

Lonewolf: !

Lonewolf: Lorraine-education and seminars and listservs

WonderW: agreed

Lonewolf: ?

WonderW: I think that ppl tend to think we're retarded because of the visual-spatial perception thing

Lonewolf: !

WonderW: which is often affected

WonderW: yes?

WonderW: go ahead

Lonewolf: I agree wholeheartdly

Lonewolf: can we go on to the last ?

WonderW: like, if I run into walls or am unable to judge distances, or stare, ppl don't understand

WonderW: yes, it is What is the value of of conventional versus alternative treatments?

Lonewolf: For CP treatment depends on the person and the severity. For me I

Lonewolf: only eye surgery (CP caused ocular motor problem where I was born

Lonewolf: with crossed eyes and now have perceptual/depth perception and

Lonewolf: spatial deficits). I also have had physical therapy. I feel

Lonewolf: alternative therapies are always better. Surgery generally is not

Lonewolf: helpful.

Lonewolf: Special education just limits the student's potential and limits

Lonewolf: access to math and science and lowers standard so student later on

Lonewolf: has less access to college and go

WonderW: and Special versus regular ed

WonderW: true

Lonewolf: !

WonderW: however, I loved Special Ed, but I think the transition needs to be smoother

WonderW: go ahead

Lonewolf: Special ed sure helped my son

Lonewolf: he would never had made it through school without it

Lonewolf: but he was mainstreamed after a year

WonderW: there was a point after which it limited me, but I never would have made it through math without it

WonderW: wb Brian

wacky-ST: hi

Lonewolf: Is that all WW?

WonderW: question is what is value of special versus regular ed?

WonderW: any more to say?

WonderW: yes, if no one wants to add

Lonewolf: Thank you Laura that was very interesting

Lonewolf: Thanks everyone for coming

WonderW: you're welcome

wacky-ST: yup

WonderW: sorry it went over a little

Lonewolf: its ok

Lonewolf: it was interesting

WonderW: good

WonderW: :)

Lonewolf: stuart wasn't dignosed until he was 5

wacky: I was 2

WonderW: wow

wacky: when my parents were told docs knew at 6 mos

Lonewolf: he kept walking on his toes, stuttering couldn't ride a bike etc

WonderW: I was 18 months, would have been sooner but doctors afraid of malpractice

Lonewolf: what actually happened?

wacky: with whom

Lonewolf: WW

WonderW: my mom was pushed into a jewelry counter

Lonewolf: oh no

wacky: she was in her invisible plane........

WonderW: by guys who were robbing the store

WonderW: lol

WonderW: and fell out

Lonewolf: that's aful Laura

Lonewolf: so sorry

wacky: so u wer a pre birth?

WonderW: yep

WonderW: 6 and a half months

Lonewolf: Stuart was full term

Lonewolf: difficult delivery

WonderW: am surprised I am not more involved

Lonewolf: no kidding

Lonewolf: I'm going over to the main room

WonderW: my speech was slightly affected, but mostly with breath control

WonderW: ok

wacky: I was born 9 wks pre before infant respirators

WonderW: oh man

WonderW: that sucks

Lonewolf: oh my

WonderW: I should go rest, guys

WonderW: am spasming a little from the typing/trying to focis

WonderW: I think next time if I do this, we should abolish ? and !

WonderW: makes it harder

WonderW: have to type name first

WonderW: see you soon

IrishGen: Hello

IrishGen: what is going on ?

wacky: wieght 3 lbs 3 oz at 16 in

Lonewolf: when the doc told me cp for stuart I just bawled