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Lonewolf: Daniel-where is Laura?
Mooooooo: she will be here momentarily
Lonewolf: ok we'll wait
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Lonewolf: there she is
WonderW: hi guys
Lonewolf: so you have already started it?
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Lonewolf: Hello everyone
Lonewolf: Tonight we have a guest speaker
Lonewolf: Our own Wonder Woman
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WonderW: , tonight's meeting is on Cerebral Palsy, which is my disability
Lonewolf: I have responses to the questions from Lorraine Lavorata and from my son
WonderW: cool, that should help
Lonewolf: anyone that is a slow typer please add st to your nic
Lonewolf: for a statement type !
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Lonewolf: for a question type ?
Lonewolf: and WW will call on you
Lonewolf: any questions?
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Lonewolf: ok Laura I'll turn it over to you
WonderW: really late attendant
Lonewolf: whwnever you are ready
Mooooooo: attendant was supposed to be there an hour ago
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wacky-ST: Then she doesnt attend to her job much does she?
WonderW: ok, sorry
Lonewolf: go ahead ww
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WonderW: anyway, CP is caused by damage to the brain before or during birth
WonderW: it is basically a lack of oxygen to the brain
atrpilot: were you born with it or did you get it at a later time? STa
WonderW: I was born with it
WonderW: was born two and a half months prematueely
Kark: Do you know what's the most common reason for loss of oxygen to the unborn that causes CP
Lonewolf: ww wacky wants to say something
WonderW: the extent of the damage really depends on where in the brain the damage is
Lonewolf: kark please type ? and ww will call on you
Kark: oh sorry
WonderW: no one really knows, but it can be be caused by birth trauma, Rh negatove blood, or German measles in the mother
WonderW: during pregnancy
wacky-ST: it (CP) can be acquired at a later date b4 age 5 (i was 3mos old)tho rare it does happen...
HelloKit: just wanted to say the part about german measles is interesting... i hadn't heard that. it's also been known to cause some cases of amc
WonderW: hmm, I didn't know that either
camille3: does it only affect the brain
HelloKit: including mine, most likely
WonderW: but amc and CP are similae
wacky-ST: can I inject laura
WonderW: if you want, you can do the types of CP
WonderW: which was my next point
wacky-ST: ok CP affect the motor cnter of the brain can manifest in speech balance and coordination as welll as othe physical areas cognitive skills rarely affected
Kark: how is AMC and CP similae
wacky-ST: i only know 3 types for sure
WonderW: AmC has joint contractures and stiffness, too
anny1: amc and cp are similiar becouse amc can be caused by brain development problem
WonderW: good, thanks
anny1: it's what they told my cause was
WonderW: my CP is the spastic type, which means that my legs, and to a lesser extent my arms become very stiff and tight
anny1: does cp always involve spasicity?
WonderW: athetosis is a type which means the muscles are always moving
WonderW: they rarely stop
wacky-ST: there are 4 basic types of CP these are: athetiod (loss of all control characterized by writhing movements) spastic ( laras meniotioned) ataxic (loss of internal balance) and mixed
wacky-ST: I am mixed
Lonewolf: cam did you get your question answered?
WonderW: that's what ppl usually think of when they think spastic
wacky-ST: combine all four and u have me
WonderW: you are, Brian?
wacky-ST: yup u know that
WonderW: mixed means that a person can have two of the four types
wacky-ST: or more
wacky-ST: in any combo
WonderW: ppl with ataxia can usually walk, but have trouble with balance
camille3: are there meds you can take to help
WonderW: yes, but I've found that thru sometimes work for me and other times not
Lonewolf: Brian you said you developed yuours at 3 mo-from hat?
wacky-ST: in my case I have no sense of balance that is not external, i have extermlely low muscle tone in upper extremities I am hypermobile, I have increased tone in lower makes my legs scissor when I stand or I can over evstend
wacky-ST: i was accidentally suffocated
wacky-ST: or anoxic
WonderW: I had scissor standing too
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WonderW: I had an operation at 4 to correct it
wacky-ST: but i can lock in an over exstension too lars
HelloKit: i have a friend w/ cp who doesn't have any spasticity or uncontrolled movements... she can walk but very bent over, knees bent, and weak - can't walk for long. would this be ataxia?
wacky-ST: ataxia and athetitosis
WonderW: how's her balance?
HelloKit: hard to tell, never seen her walk for long
wacky-ST: if knees bent she possibly a diaplegic
wacky-ST: higher tone in legs
WonderW: we should discuss that too
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WonderW: CP can be in monoplegia, which is one limb affected, but rare
WonderW: hemiplegia is one side of the body
wacky-ST: no such thing as a CP para tho
WonderW: quadriplegia, all four limbs
wacky-ST: or diaplegia
HelloKit: she also has cfids and fibromyalgia so hard to tell what goes w/ which
wacky-ST: mainly legs but hands and arms slightly affected but not noticed to untrained eye
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WonderW: diplegia is where the arms are much less affected than the legs usually
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wacky-ST: oh we fo got one lara
wacky-ST: dble hemi
WonderW: I've heard of spastic paraplegic CP, Brian
wacky-ST: where a person is afected on both side but arms more than legs
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WonderW: yeah, thanks
wacky-ST: miss nomer for diaplegia lara I herd it to and asked
wacky-ST: orthos use that term
wacky-ST: ortho pedist
WonderW: anyone have any ?
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Lonewolf: 1. Do you have regular contact with someone with Cerebral Palsy or another
Lonewolf: neurological condition offline?
Lonewolf: How has this impacted you?
wacky-ST: course im not as affected by cp now
wacky-ST: so i donno
Lonewolf: My son has mild cp
Lonewolf: we went through a lot of tests and casts and special classes
WonderW: I'm spastic, just speak :)
WonderW: so did I
Lonewolf: he says having cp has made him aggressive
WonderW: yes, Brian?
anny1: i had a good friend in school who has cp and is now a speech therapist
Lonewolf: because he was teased so much grrowing up
Mooooooo: I do!
* Mooooooo has frequent regular contact with someone with
wacky-ST: i was told growing up to hide as much as i cld ( i cld freewalk I was shamed to think i was less than .... anyone esle share that?
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HelloKit: i of course have the friend i mentioned who unfortunately i don't have much contact with anymore since she's in seattle and i'm in ri... and since moving i now have chris' nephew zack who has cp caused by hydrocephalus
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HelloKit: he's 6, as of yet nonverbal, nonwalking
Lonewolf: This is France and I have mild CP so here is my contribution:
Lonewolf: CP is not a disease, it is a condition. I am not sick or contagious,
Lonewolf: I just have impairments.
HelloKit: he's an angel, i love him
Lonewolf: that's lorraine's
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WonderW: ok, what are common stereotypes of ppl with CP?
Lonewolf: Yes, myself, I have mild CP and severe neurological
Lonewolf: > How has this impacted you?It impaires visual/spatial/perceptual abilities, balance,
Lonewolf: motor skills/coordination and mobility
confused: I wonder if anyone sees this?
Lonewolf: excuse me
Lonewolf: confused we are in a meeting
Lonewolf: to make a statement type !
WonderW: it impacts me that way too
Lonewolf: to ask a question type?
confused: I'm sorry I just didn't know if I made okay.
Lonewolf: no excess chat
wacky-ST: i have no depth perception have to use cane in unfamiliar spots
wacky-ST: u know a white one
WonderW: yep :)
WonderW: I have a hard time judging how far away or close things are
Lonewolf: Lorainne said That we are retarded, drunk or slobs. Well I am one of the most
Lonewolf: immaculate meticulous people you will meet and I also have an IQ of
Lonewolf: 148 and I am a college teacher and doctoral student
WonderW: way to go!
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wacky-ST: ppl like to think i am forever 5
wacky-ST: i read at a 12 grade level at 9
WonderW: ppl do that with me too
wacky-ST: and have iq of 130 hows that for a mental defective?
WonderW: sometimes it's hard not to believe it
confused: Yes, I have a question.
WonderW: go ahead
confused: I am trying to do some research for a college class and I feel like I keep hitting a dead-end...
WonderW: on something related to CP?
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Lonewolf: I have never made the exact connection between cp and adhd
confused: on something related to disabilities in general..I want to know how ppl feel the Internet helps ppl with disabilities..or if they feel it helps at all.
Lonewolf: confused we are in a meeting you will have to come back later
WonderW: that would be better discussed when the meeting is over
wacky-ST: Ppl w/ CP are at a higher risk of Ld and behavior disorders
Lonewolf: but how so?
WonderW: I have a learning disability, too
WonderW: in math only
wacky-ST: now that one I cant answer
Lonewolf: Stuart did too and I never quite understood
confused: Lonewolf..this is not someone playing around..I understand that you are in a meeting..perhaps you would be kind enough to tell me who can help me with my search..I too am disabled and want to know the answer
wacky-ST: i am dyslexic and adhd
WonderW: I think it just depends on the part of the brain affected
Lonewolf: after the meting confused
wacky-ST: yep lara
Lonewolf: were you oth aggressive?
WonderW: we're no
wacky-ST: i am but that i think was cuz i had an older sib
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wacky-ST: that like to say: you cant do this cuz ur... (whatever her reason was)
wacky-ST: good motovator
WonderW: let's jimp to the question on that Do you think that ppl with CP are more or less likely to be assertive/aggressive?
WonderW: and why
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Lonewolf: Lorraine-to some degree. People with neurological disabilities are the most
Lonewolf: discriminated against especially in employment and have the highest
Lonewolf: unemployment rate so lose assertiveness. I am only able to teach
Lonewolf: college (not a steady income till I complete my doctorate). Most
Lonewolf: neurologically disabled people like me need mobility assistance,
Lonewolf: assistance with problem solving and judgment, motor skills and
Lonewolf: perceptual skills and thus many employers fire them and refuse to
Lonewolf: accommodate them. In college t
Lonewolf: In college teaching these problems do not arise for
Lonewolf: me, but in all other work they do.
WonderW: that's really true
WonderW: I've found that my perceptual difficulties sometimes cause me to stare ahead
WonderW: and ppl think I'm unaware
Lonewolf: Stuart's adult response has been to become an aggressive businessman
Lonewolf: as if compensating
WonderW: do you think that might be because he got tired of not being heard?
wacky-ST: i think the asserstion argressive depends on the enviroment one is face with wheter coddled or taugh independence and whether they are allowed to the oppertunity to fail
WonderW: or is it innate, or both?
Lonewolf: not sure
WonderW: I totally agree there, but I think it's also individual response
wacky-ST: i have a story if u can wait its a good example
WonderW: so a mix, as usual
wacky-ST: I was abt 2, my older sis was on the couch watching sat morn cartoons and I wanted up too, try try try as i did I kept falling of the couch couldnt get up there, my dad saw and placed me up there I screamed the only word i cld say that ppl understood NO. got down and kept trying he helped a few more x's but after my continue defiance he gave up and left me a lone. 2 hours later covered in sweat, cartoons over, and much to my si
wacky-ST: sorry for the typos
WonderW: cool, Brian
WonderW: good story, I like it
wacky-ST: been like that my whole life
WonderW: I know :)
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WonderW: ok, I have another ?
wacky-ST: why I became a counselor I wanted to be the one helping for a switch
wacky-ST: i gotta jet
WonderW: which is What basis do the stereotypes surrounding CP have in fact, and how can we reduce them?
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WonderW: we're alm,ost through anyway
WonderW: thanks, Bri
Lonewolf: Lorraine-education and seminars and listservs
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WonderW: I think that ppl tend to think we're retarded because of the visual-spatial perception thing
WonderW: which is often affected
WonderW: go ahead
Lonewolf: I agree wholeheartdly
Lonewolf: can we go on to the last ?
WonderW: like, if I run into walls or am unable to judge distances, or stare, ppl don't understand
WonderW: yes, it is What is the value of of conventional versus alternative treatments?
Lonewolf: For CP treatment depends on the person and the severity. For me I
Lonewolf: only eye surgery (CP caused ocular motor problem where I was born
Lonewolf: with crossed eyes and now have perceptual/depth perception and
Lonewolf: spatial deficits). I also have had physical therapy. I feel
Lonewolf: alternative therapies are always better. Surgery generally is not
Lonewolf: Special education just limits the student's potential and limits
Lonewolf: access to math and science and lowers standard so student later on
Lonewolf: has less access to college and go
WonderW: and Special versus regular ed
WonderW: however, I loved Special Ed, but I think the transition needs to be smoother
WonderW: go ahead
Lonewolf: Special ed sure helped my son
Lonewolf: he would never had made it through school without it
Lonewolf: but he was mainstreamed after a year
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WonderW: there was a point after which it limited me, but I never would have made it through math without it
WonderW: wb Brian
Lonewolf: Is that all WW?
WonderW: question is what is value of special versus regular ed?
WonderW: any more to say?
WonderW: yes, if no one wants to add
Lonewolf: Thank you Laura that was very interesting
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Lonewolf: Thanks everyone for coming
WonderW: you're welcome
WonderW: sorry it went over a little
Lonewolf: its ok
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Lonewolf: it was interesting
Lonewolf: stuart wasn't dignosed until he was 5
wacky: I was 2
wacky: when my parents were told docs knew at 6 mos
Lonewolf: he kept walking on his toes, stuttering couldn't ride a bike etc
WonderW: I was 18 months, would have been sooner but doctors afraid of malpractice
Lonewolf: what actually happened?
wacky: with whom
WonderW: my mom was pushed into a jewelry counter
Lonewolf: oh no
wacky: she was in her invisible plane........
WonderW: by guys who were robbing the store
WonderW: and fell out
Lonewolf: that's aful Laura
Lonewolf: so sorry
wacky: so u wer a pre birth?
WonderW: 6 and a half months
Lonewolf: Stuart was full term
Lonewolf: difficult delivery
WonderW: am surprised I am not more involved
Lonewolf: no kidding
Lonewolf: I'm going over to the main room
WonderW: my speech was slightly affected, but mostly with breath control
wacky: I was born 9 wks pre before infant respirators
WonderW: oh man
WonderW: that sucks
Lonewolf: oh my
WonderW: I should go rest, guys
WonderW: am spasming a little from the typing/trying to focis
WonderW: I think next time if I do this, we should abolish ? and !
WonderW: makes it harder
WonderW: have to type name first
WonderW: see you soon
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IrishGen: what is going on ?
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wacky: wieght 3 lbs 3 oz at 16 in
Lonewolf: when the doc told me cp for stuart I just bawled