HelloKit: logging is on
&Mooooooo: i is lagged
Mooooooo: start the log?
HelloKit: just did
HelloKit: Well everyone, I am unprepared again... but will do my best :o)
HelloKit: ping me
Red_: 1 sec
HelloKit: Thanks :o)
HelloKit: Are we all ready to start?
Mooooooo: yep :o)
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HelloKit: Hello shayna :o)
shayna: hi
HelloKit: First question...
beetlebug: hi ya shayna
shayna: what's up?
HelloKit: How many live independently already?
ket: me
beetlebug: shanya where are you from
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Mooooooo: me does
Mooooooo: kinda
Red_: me
shayna: Missouri, how about you?
beetlebug: hey gal
beetlebug: Pa.
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Mooooooo: i live with family again
Mooooooo: but i rent
Mooooooo: 2 rooms
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judi: Hi everyone
beetlebug: how's the weather out there
Mooooooo: judi :o)
beetlebug: hey,judi
HelloKit: Hi judi... current question is: How many live independently already?
judi: With husband?
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HelloKit: That counts, I would think. :o)
gb_gal: hi
ket: lol
judi: I need day help sometimes
ket: hi gb
HelloKit: For those who do live independently, were there any issues that had to be solved (i.e. attendant care)?
judi: I doubt I could live alone
beetlebug: i might as well, I do every thing any way
judi: Big problem for us
beetlebug: why, that,judi
Red_: dressing myself was an issue at one point
judi: Sometimes I can't even get outta bed, I have a potty chair but have a tendency to faint before I get up when I'm in bad shape so.......
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ket: hi andie......
andie1: hi ket
LordNick: hello everybody
judi: Plus there's the matter of food, drink, etc
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LordNick: does anyone here know any latin?
Mooooooo: e plurbus unim
Red_: why would you faint judi?
beetlebug: don't feel bad i bet your keeping alot of people employed
ket: lol moooo
HelloKit: Hello andie1, Jody and LordNick :o) current question is: For those who do live independently, were there any issues that had to be solved first?
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judi: Red, how did you solve the dressing thing
Jody: sorry I'm late.... evening all.
HelloKit: Mimi!
Mimi: hi :o)
Jody: Hey Mims!!!
HelloKit: Mimi, current question is: For those who do live independently, were there any issues that had to be solved first?
LordNick: really...does anybody know any latin?
LordNick: enough to translate stuff
Jody: used to....
Mimi: oh wow...totally forgot meeting night
Red_: I discovered sticks, tools, when I was in the hospital
gb_gal: hi dancer
ket: hi mimi
Red_: tools to put on socks
Mimi: hi ket :o)
LordNick: 'In manus tuas, commendo spiritum meum.'
Jody: I can't afford to live independently just yet..... but there would be issues to solve. I know that much...
judi: I need one of those, feet are far away
HelloKit: If you haven't already answered this, how were these issues solved?
LordNick: might be 'In your hands, I commend my spirit.'
Dancer: I'm back, did I miss much?
Mooooooo: Jo left, but she said she had all the water shutoffs made reachable
gb_gal: hi dancer
Dancer: Hello.
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beetlebug: i think everyone could live independently with in reason with the right tools
judi: I haven't solved them, even considered a nursing home a few times but family won't hear of it
Red_: how about a live-in attendant?
judi: Tools don't help with things like blood pressure drops, vertigo, etc
Dancer: I want to move away from home too.
judi: money
Mooooooo: my friend Darlene had a live in attendant for her dad
judi: How did she pay for it
Red_: well that does have a way of getting in the way
HelloKit: There is state aid to help pay for attendant's, judi.
HelloKit: er... attendants
Mooooooo: free rent for her and her kid and a small wage
Dancer: That is also my problem, money.
judi: But, my husband has a good job, just not good enough to afford the rates they charge
beetlebug: i think it would be neat to a disabled person to teach people not to throw money at these problems
Jody: some insurance companies will pay for attendants. my mom worked for a home-care organization.
judi: It cost about $8-9/hr for a sitter
Dancer: they don't have group homes around here for physically-only challenged people.
Mooooooo: wow
judi: That was gonna be our next step last go round, home health, but you still have to pay for your own sitter, ins doesn't cover it
beetlebug: i mean some people think it takes $100.00 for a 50 cent solution
judi: I don't follow you beetle
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beetlebug: well if they would ask the person their helping that persons point of veiw
Jody: all the home aides that my mother's company sent out were paid for by insurance... maybe you need an aide that is certified or something...
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judi: By the way, any females here know an easy way to get a bra on when you can't get reach behind you at all
andie1: web ket...
andie1: wb
Mimi: wb ket :o)
Mooooooo: wb :o)
beetlebug: and just maybe that person has a solution to the big problem
Jody: front-close bras
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ket: thanks
HelloKit: I know someone who has a live-in attendant/friend who works in exchange for room-and-board... and she has another attendant come in a few times a day to help out, her Medicaid pays for that one.
judi: Aides can't stay all day though
Mimi: close it in front and then twist it around you until the clasp's in back :o)
Dancer: current question?
judi: Carly, that is a possibility, we have an empty upstairs
HelloKit: judi: In regard to bras... how about sports bras that you pull over your head?
Jody: some college students majoring in medicine or nursing look for live-in situations....
judi: I'm fixing to embarras myself but, well, I'm a wee bit large in that area so comfort does not always come in handy styles
HelloKit: heh
judi: That's a good idea Jody
HelloKit: Is anyone considering making a move into independent living in the not-too-distant future?
Jody: judi: try front-close bras.... Warner's makes a nice one that fits larger gals like us
* HelloKit raises her hand.
Dancer: I'm with you Judy.
Jody: ME!!!!
judi: ok, thanks
Dancer: Me. Hopefully in spring.
Jody: brb
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* Mooooooo is out on his own in Dallas
ket: hi tybee
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tybee: hiya, ket and all
HelloKit: What kinds of issues are you facing when you move?
gb_gal: hi tybee
andie1: wb susan
Susan: hey -- Mooooooo -- you ar ein Dallas now?
Mooooooo: not yet
Dancer: Does anyone have ideas on smooth transitions, people wise? I.e. how to leave without making parents uncomfortable and new people uncomfortable?
Mooooooo: just having nothing and nobody
Dancer: This will be my first venture
Mooooooo: its very scary
gb_gal: good luck dancer
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HelloKit: Dancer... you could be like me and hang around so long that they can't wait for you to leave ;o)
beetlebug: not to mention the guilty
judi: Its hard for parents to let go anyway, but I'm sure its magnified with a diabled child
Dancer: your talking to someone that can't do a lot for herself.
Dancer: No kidding.
judi: Are you going to have help, Dancer
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Dancer: Yes, probably an adult foster care situation.
HelloKit: Hi steve :o) Current question is: What kinds of issues are you facing when you move?
steveH: hello
judi: Oh, have you met the foster family yet?
Red_: getting people to help with moving!
gb_gal: hi steve
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andie1: wb jody
gb_gal: wb jody
steveH: hi gb_gal
Jody: thank you....
Mimi: I have to go guys...have an early plane in the morning
gb_gal: how are ya steve??
gb_gal: have fun in vegas mimi!!!!
HelloKit: I worry about how to handle being left alone... I know my bf isn't going to be able to stay home with me all the time.
steveH: doing pretty good, you?
judi: where ya going mimi
beetlebug: see ya
Jody: ooohhh..... have a great time. Will we see you here this week?
ket: mimi have a great time!!!!
* HelloKit hugs Mimi!!!
Mimi: to Vegas, but I'll be back online in a couple days :o)
* Jody hugs the stuffing out of Mimi
Mimi: thanks everyone!
judi: have fun
* Mimi just hugs everyone :o)
Susan: night Mimi
ket: bye mimi
Mimi: bye!!
gb_gal: bye mimi
Jody: Have a great time!!!
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judi: Carly, have you ever stayed alone at all?
Dancer: not met anyone yet. Still working on talking to people about it. (read parents)
HelloKit: Yes, but not for long periods of time.
beetlebug: oh yes!
judi: Understand Dancer
Jody: judi: acknowledge private chat, please
HelloKit: It's like, if I'm alone and I have to go to the bathroom, I'm up the creek......
judi: See, that's my problem, hubby can't be here all the time
judi: How do I do that Jody
gb_gal: steve...did you get my private message?
steveH: yes, how do you send one?
HelloKit: Jody: judi is using the java chat, she can't do DCC chat
Jody: it should ask you if you want to acknowleged... do you see a little button on the bottom of your screen?
Jody: oh... okay then
gb_gal: steve...are you using java chat?
Dancer: I'm 20. Am I the youngest here?
* HelloKit is 18.
tybee: :)
steveH: it is a java script, but not java chat
gb_gal: nope..20 also
Red_: yikes!
* Mooooooo is old
ket: lol
gb_gal: steve...did my message come up in a little box on the bottom of the screen/
* Red_ is old also
beetlebug: how old is old
steveH: steve is old
Mooooooo: gb, steve is in Java chat
steveH: no
gb_gal: steve...then double click on my name
Mooooooo: next question carly :o)
* HelloKit can't think of one... :o/
ket: lol
Mooooooo: ok
Mooooooo: i have one
HelloKit: k go for it
Mooooooo: How do you all plan to get around when you move out. transportation?
* HelloKit can't think, period.
ket: :)
Mooooooo: think 'comma' then
HelloKit: lol
ket: that is a problem
ket: rides
Mooooooo: How do you all plan to get around when you move out. transportation.
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Mooooooo: official
ket: that dont show
Red_: I drive
Jody: I drive too
Dancer: dial a ride. If they go on until then.
Red_: with my left foot
Dancer: Lucky.
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Jody: you okay, judi?
Mooooooo: how about a hands-only car
HelloKit: We have a junker Pontiac that will get us around town, and if we have to go out of town we trade with my mom for her van.
Red_: yes, I feel lucky
* HelloKit doesn't drive yet.
judi: I am such a computer geek
HelloKit: But my bf does.
Dancer: My startle reflex is too bad.
beetlebug: same here
Jody: it gets easier after awhile...
Mooooooo: my friend Ahalam had a car with hand controlls only since she had no legs
Jody: hope that info helps you....
judi: hope so
judi: it will, thanks
HelloKit: Hey... Sierra has a new computer program out called Driver's Ed. It comes with a steering wheel and simulates driver's training.
judi: I can't drive anymore
HelloKit: It's only $40 too.
Mooooooo: cool :o)
* HelloKit wants it for X-mas... hint, hint
HelloKit: hehe... just kidding
ket: lol
Jody: lol.... nice try
Mooooooo: my mom needs one called 'back seat driver'
Jody: LOL
HelloKit: lol
judi: lol
Mooooooo: practice screaming into the microphone
Jody: I have a request for information....
judi: what
Mooooooo: ok
HelloKit: With that I could teach myself to drive... then when I can afford a van it won't be so hard to learn to drive it.
Jody: where do I find a catalog that supplies things that can be used to make living in your house easier...
Mooooooo: carly has catalogs
Jody: such as.... door handles, gadgets that open things, etc
Jody: you do Carly?
Red_: I have to go people, I'm glad I could be at a meeting
HelloKit: Mooooooo is referring to an inside joke... sort of. But I could probably find you some.
Red_: goodnight
Mooooooo: i would try a web search for Assistive Technology
beetlebug: see ya red
gb_gal: bye red!!
Jody: I know they're out there... I just don't know where to look
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judi: Jody, Sears has a catalogue called, 'For Your Special Needs'
beetlebug: you might look under automation
Jody: thanks.... I'll call them
judi: I have had several different ones, I'll look up the names and addresses for you if you want them
Jody: I mostly need hardware type stuff. Door handles... like that
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judi: The Arthritis Today magazine always has ads for them in the back
Mooooooo: hi david
Jody: really? I'll have to look. I have that mag.
Kainx: dan! goodness it's been a long time :)
judi: I'll write tomorrow
Kainx: how have ya been ?
Jody: thanks!
beetlebug: a catalog called Health house might some thing for you
Jody: do you have RA, judi?
judi: I've gotten some goodies out of Carol Wright or Harriet Carter cat
judi: yes
Jody: so do I....
judi: plus a few other itises
beetlebug: you can get real good ideas from those
Jody: :) I just have the one itis. It's enough
judi: no kiddin!!!!
Jody: thank you, beetlebug. I look it up
judi: Where can you get Health House
Dancer: current question?
beetlebug: look in cataloglink.com
Jody: brb
judi: thanks
* HelloKit has one more question...
beetlebug: shoot
Mooooooo: okay carly
HelloKit: Is there any advice you can give to someone looking to become independent?
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Mooooooo: move to another state
Mooooooo: assume a new identty
Mooooooo: denise :o)
judi: Gets lots of info first
Amazin1: Hi all :)
judi: hi denise
tybee: hiya, Amaz
HelloKit: Hi Amazin1 :o) Current question is: Is there any advice you can give to someone looking to become independent?
beetlebug: don't let anyone discourage you ,remember their not in your shoes
steveH: What is the situation?
judi: Daniel, are you trying to give your mom a heart attack?
Amazin1: it takes lots of determination and persistence
Mooooooo: lol
beetlebug: tell me about it
judi: I think each one of us has our own needs, I would think those needs who have to be attended to and the best weapon against failure would be 'having all your bases covered'
beetlebug: but that's what makes us stronger than most folks
Jody: I just need the money to move out....
judi: they call it 'stubborn' down my way beetle
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Amazin1: :) judi
beetlebug: i hear you
judi: Jody, that was Penny's not Sears
Jody: jc penny.... good. got one near by.
Jody: thankks
Jody: my 'stubborness' when it comes to indenpendence drives my family nuts
tybee: :)
judi: Money is the problem we all run into. Add the words disabled to anything and the price jumps sky high
HelloKit: All, I hate to leave so suddenly, but I'm feeling rather ill...
HelloKit: I'll see you all later.
Jody: actually.... even iif I wasn't disabled I couldn't afford rent.
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Mooooooo: bye Carly :o)
Jody: hope she's okay
judi: me too
Mooooooo: Ok, party time YEEEEEEEEEEEEEEEHAAAAAAAAAAAAAAA!!!!!!
Mooooooo: she will be okay :o)
beetlebug: well i got mixed messages when i was growingup some people stessed independence and other shoed pity
Mooooooo: pity sucks
beetlebug: excuse me showed
Mooooooo: go for independance
beetlebug: tell me ,that make me boil
Dancer: a... same here, bug.
judi: My husband is a lot older than I am and he constantly worries about dying before me and how I will survive. I gotta go too, Chicago Hope is coming on
Mooooooo: see ya Judi :o)
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Jody: enjoy it... goodnight Judi
beetlebug: see ya
Jody: my family just feels that if they are around, I should feel comfortable asking them for help.
Jody: I usually insist on doing it myself, even if it is more difficult.
Mooooooo: Jody, if you need help, ask for it. but if you can do it on your own, even hard as it is, do it
beetlebug: well family is one thing and then there are other people
Jody: I don't have a problem that way... I can hide my disability. Which leads to other problems, of course.
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Mooooooo: what is your disability?
gb_gal: hi phil
Jody: are you asking me, Dan?
Amazin1: Moo, you type faster than I do :)
Mooooooo: yep
Mooooooo: hehe
Jody: I thought you knew.... I have a bad case of RA.
beetlebug: hy phil
PHIL: HELLO BEETLEBUG. HOW ARE YOU?
Jody: mostly knees, but my hands are getting bad now too. So's my neck and back.
Jody: ping me
beetlebug: well,I'm going to have to cut out guys
Mooooooo: see ya beetle
Jody: thanks for the info beetlebug.
Jody: night
PHIL: seeya
beetlebug: no problemo
Mooooooo: sorry, Jody. I read Judi :o)
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gb_gal: hi phil!
Dancer: current question?
Jody: she's got RA too
Jody: I think we're finished Dancer....
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