Mimi: hello Han!
HelloKit: welcome han
Lao-tzu: hi all
Mimi: thanks for the email yesterday!
HelloKit: r we ready 2 start?
Lao-tzu: welcome, my pleasure, hope it's informarmative
Mimi: it is, Han :o)
haa: mimi it does have a high roof
Mimi: I've seen it from afar, but that's it. You don't like it?
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Mimi: hello jolene! :O)
HelloKit: hello jolene
haa: it is not comfortable but is practical
jolene: hello everyone!
Mooooooo: Hi jolene!
HelloKit: is every1 ready 2 start?
Mooooooo: I am
jolene: All set to go.
haa: hello jolene
haa: what is the topic
HelloKit: heh... lucky 4 me i have all my q's typed out and ready 2 copy & paste
jolene: What are we going to talk about tonight?
Mooooooo: Aches and Pains
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HelloKit: topic is: 'solutions 4 those aches& pains'
Ariella: hi :)
HelloKit: 1st question:
HelloKit: How many experience some kind of aches or pain as a result of their disability?
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Mooooooo: I do
* HelloKit raises her hand
* Lao-tzu can feel the rods in his back
jolene: Solutions to what kinds of aches and pains--temporary or chronic?
HelloKit: whatever comes up jolene
HelloKit: what kind of pain, mooooooo?
Mooooooo: any time i bend over for more than 30 seconds it hurts bad when i get back up
* HelloKit . o O ( i hate the enter key on this kb )
jolene: I have Chronic Fatigue Syndrome/Fibromyalgia with Chronic Myofascial Pain.
Mimi: I experience pain completely unrelated to my disability, is that ok?
Mooooooo: i have to lay flat on my back for a few minutes
HelloKit: doesnt sound fun, moo or jolene
Mimi: hi Fenicia :o)
Lao-tzu: technically there are 2 kinds of pain -- acute and chronic
haa: i have chronic pain and swelling in my lower left arm - my only useful arm
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HelloKit: i get sharp arthritis-like pain in almost all my major joints - wrists, hips, knees, ankles
jolene: My pain is chronic, but I've had other medical problems in the last year and a half that have caused both chronic and acute to attack at the same time.
HelloKit: especially my wrists
HelloKit: Has anyone asked a doctor about the pain?
Mimi: what's the difference between chronic and acute?
jolene: HelloKit, what do you do for the arthritic pain?
haa: i take lots of over the counter pain stuff
HelloKit: not much, jolene - i do have braces 4 my wrists
Mooooooo: mine just told me not to bend over for longer than 1 minute
HelloKit: real helpful, huh moo?
Lao-tzu: acute pain is sudden, chronic is long-lasting
jolene: Chronic pain is severe and unending. It really never goes away--only the severity varies over time. Acute is severe pain that is alleviated over time, and it disappears.
Mooooooo: there isnt much else that could be done
HelloKit: anybody else asked a doctor?
haa: acute goes away but chronic does not
HelloKit: personally i went to my ot - she made my wrist braces
jolene: My problem is that I cannot take anti-inflammatories because they give me ulcers. So I live with the pain.
Mimi: ok, well then I have chronic jaw pain due to TMJ
Lao-tzu: Book to read: The Challenge of Pain 2nd ed. by Ronald Melzack & Patrick D. Wall
Mimi: my doctor doesn't know what TMJ is!
HelloKit: thats always nice, mimi :o/
Lao-tzu: too much jibing?
Mimi: yeah, Carly :o)
Lao-tzu: sorry :-)
jolene: Mimi, I know what that's like because I too have TMJ problems and arthritis in the jaws.
haa: i collect natural resource sites these days
HelloKit: could be worse - our former dr. claims fetal alcohol syndrome doesnt exist
Mimi: what do you do for your TMJ, jolene?
Mooooooo: I have a pretty high tolerance to pain
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Mooooooo: hello luscious
Mimi: hello luscious
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jolene: I had a doctor once tell me that if they did not teach him about a particular ailment at Harvard, then it must not exist, and he was serious!
HelloKit: has anyone had a doctor recommend something that worked or at least helped?
Mimi: wow, jolene!
^tejo: hi all
HelloKit: hey tejo
Mimi: not so far, Carly
* ^tejo sends greetings to HelloKit
Mooooooo: lol, well i quit bending over for more than 1 minute :o)
Mimi: my dentist helped a bit, though
jolene: I find that manipulative therapy does a good job for short periods of time.
Mimi: sounds reasonable, Daniel *g*
HelloKit: what did your dentist say/do, mimi?
Mimi: he made me a bite splint
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Lao-tzu: tolerance is a must -- what is needed is the ability to live with pain: that is, to evolve and maintain patterns of behaviour that prevent pain from totally dominating life. If you succeed in this tou will raise your pain tolerance.
HelloKit: what is that?
Mimi: I have to wear it at night, it helps keep my jaw in place when I sleep
* HelloKit nods
Mimi: it's like a mouthpiece, kind of like a retainer
Mooooooo: thats pretty much how i handled it Han
Mimi: it helped but it wasn't a cure
jolene: Pain tolerance can be learned over time--I've had this chronic muscle and joint pain now for 10 years.
HelloKit: Has anyone turned to some kind of alternative (herbal, for example) treatment for pain?
Mooooooo: I tried Herbal for pain and for sleep
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Lao-tzu: Daniel, you're right up there!
Mooooooo: all i got was disgusting smelly burps
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Mooooooo: hi brad
HelloKit: lol moo i know what u mean!
kb9kyy: hi all
HelloKit: hiya brad
Lao-tzu: hi brad
haa: i keep adding more natural stuff carly
Mimi: hey Jeff
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Mooooooo: howdy cam
ManwCam: wow...look at all the ppl
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jolene: I've been hesitant to try alternative types of herbal therapy because they are not regulated or standardized.
Mimi: hello ManwCam
ManwCam: howdy mooooo and all
kb9kyy: what's the topic?
jolene: Hi ManwCam
HelloKit: i tried an herbal deep heat rub a couple weeks ag for a pulled muscle
Mooooooo: did it work carly?
HelloKit: it worked 4 a while but eventually the pain came back
Mimi: Brad the topic is 'pain'
kb9kyy: Boy! can I talk about pain!!!
Lao-tzu: Jolene: sometimes you have to stray the path of the regulated and standardized -- I had a pressure sore that I treated with 'Dragon's Blood' a resin from the bark of an Amazon tree. Scabbed in 5 minutes and healed in 1 1/2 weeks. NO standardized/regulated treatments beat that.
jolene: I've found that water therapy alleviates some of the deep muscle pain I've had--but can't use it now because of seizures.
HelloKit: has anyone used an alternative treatment that helped?
kb9kyy: i tried hitting my head on the wall, all it did was knock me out...gt;
kb9kyy: just kidding
HelloKit: lol brad
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Mimi: well, putting my cup of hot coffee up against the side of my face works wonders
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HelloKit: serious mimi?
jolene: Hi jody
haa: i use wrist splints ordered out of a catalog that work
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kb9kyy: with all of my eye problems, I get headaches out the ***, and asprins don't usually help
jody-: hi everyone... sorry I'm late
Mimi: I also recommend not having two year olds in the house :o)
HelloKit: brad - i may have somethin 4 u
jolene: The old heating pad is always a plus for my pain.
haa: hi jody
kb9kyy: i'll keep that in mind, what do you have for me, hellokit?
Lao-tzu: hi jody
* ManwCam has to take off...
Mimi: serious, Carly :o)
ManwCam: working on a puter
ManwCam: bye all
HelloKit: peppermint is supposed 2 help headaches - i suck on an altoid
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Mimi: heya Jody :o)
jody-: has anyone discussed massage therapy?
kb9kyy: good, i've got plenty in the candy jar, i'll give that a try, tnx
haa: i use ice packs too which work
Mimi: heat is great for a lot of my aches and pains
jody-: hey Mims!
jolene: HelloKit does that work for migraine-type headaches?
kb9kyy: no comment, mimi...
Mooooooo: massage is good
kb9kyy: double no comment!
HelloKit: but what really helps is 2 put some peppermint drops on a handkerchief and inhale thru it
jolene: Moooooooo, massage is greatttttttt!
HelloKit: if u catch em 1st coming on, jolene
jody-: I startedd massage therapy and it has really helped my arthritis
Mooooooo: I heard about that on the radio Carly
Lao-tzu: Jolene: there is a special pain killer for migraines -- sorry I forgot the name, just remember that it was about $50 for 10 pills
kb9kyy: does your spouse do it for you? ;-)
jolene: That's true--I sometimes think that the pain will subside, only to find that I'm in a giant flare.
jody-: peppermint is good for stomach problems too
kb9kyy: it's also good for slingshot ammo
jody-: jolene.... do you have arthritis?
jolene: jody, what kind of stomach problems?
jody-: cramping..... mostly
jolene: jody, I have Fibromyalgia.
kb9kyy: my mom will be glad to hear that
kb9kyy: don't threaten us
jody-: but if you make a chamomile/peppermint tea it is good for cramping and diahrea
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jolene: hi Amazin1!
Amazin1: hi jolene
Mimi: whoa I'm lagged
* Mooooooo hugs the stuffing outta Denise
haa: my husb has a food pharmacy book and is always telling me to eat a raw onion daily
HelloKit: i wish i could talk my mom into coming online w/ us - shes the herbal guru :o)
Mimi: ping me
Mimi: hello Denise :o)
jody-: I have lots of books on the subject.....
kb9kyy: 17 secs, mimi
jody-: I have used the chamomile/peppermint tea a lot and it really works..
HelloKit: 15 mimi
Mimi: thanks guys, I guess I'm ok now
kb9kyy: ping me
kb9kyy: not bad, 3 secs
HelloKit: 1 sec brad
kb9kyy: i'll be back in a few, gonna get my hair cut...
haa: i now take the grape seed stuff, the pine tree stuff and a few more
kb9kyy: i won't log off, though
HelloKit: hehe, how bout thirst, any1 got a solution 4 that?
Mooooooo: drinking works for me
Lao-tzu: 32 Mimi
HelloKit: lol thanx guys :o)
jolene: Water with a twist of lemon or lime is great for thirst.
kb9kyy: moooo, send me this log when you're done...
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Mimi: personally I rely heavily on Tylenol
Lao-tzu: Moo -- you mean if it doesn't help the pain at least you have a good time? :-)
HelloKit: Does anyone have any pain that they haven't found a solution for?
haa: carly i got an iced tea machine and lots of great teas
jody-: I take so much medicine I try not to add any more
Mooooooo: Tylenol does nothing for me
jody-: I'm serious about the massage therapy though....
Mooooooo: heh, Han carly asked for a solution to thirst
Mimi: yeah, my back, Carly
Mimi: I've thought about massage therapy, jody
jolene: I have to use Tylenol 3 w/Codeine before the severe pain subsides to the point I can sleep at night if I get those migraine type headaches.
Mooooooo: yes, the opposite sex
Mimi: what has it done for you?
jody-: it really works
Mimi: heh, would be nice
Lao-tzu: I take 2000mg aspirin + 30 mg valium and I'm in business. Luckily the valium doesn't put me to sleep
HelloKit: ugh... the neighbors in back are playing country music really loud
jody-: a licensed massage therapist is like a physical therapist...
HelloKit: not that i dont like the music, but it is kinda loud
jody-: my therapist has been working on my hands which are really bad because of the RA...
jolene: I can't afford massage therapy--my insurance won't pay for it.
haa: jody when you have a diablity you do what does work and what might work
jody-: it helps... I didn't realize that it would, not that much
jody-: some physically therapy centers have massage therapists/physical therapists...
Mimi: I wonder if I can go even if I can't lie on my stomach
jody-: then insurance does pay for it... that's how I do it
jolene: Have you tried manipulative therapy?
jody-: they have chairs specially designed Mimi
jody-: never heard of it Jolene
haa: jolene i have grown to hate insurance
Mimi: oh, that's cool :o)
jody-: especially workers comp insurance....
jody-: massage works well for headaches too
jolene: It's osteopathic generated theraphy that stretches the muscles to make them relax--much like massage therapy.
HelloKit: yes jody :o) i always have chris massage my temples when i have a headache
jody-: my PT does that to me a little bit... it helps
jolene: haa, I detest insurance companies telling what can and can't be done.
jody-: I was very skeptical at first especially when she started massaging my hand joints...
jody-: but what a difference
Pei: I MISSED IT!
Pei: I MISSED THE MEETING!
jody-: I personally believe that all insurance people shhould be rounded up and shot....
jody-: but that is only my opinion
HelloKit: something that works for me with heachaches (most of mine are sinus/allergy related) is to plug my nose & blow air thru, like when yer trying 2 pop yer ears
haa: mine too
jolene: My insurance only pays for short-term physical therapy. Do you all have similar type of insurance. If you do, how do you handle chronic, long-term problems?
jody-: Carly.... have you tried Flonase for your allergies/sinus?
HelloKit: no jody, what is that?
jody-: I'm on comp and the judge ordered the company to pay...
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jody-: it is a great new medicine that is only topical for the nose...
HelloKit: is it rx or otc?
jolene: jody, is it better than Vancenase?
jody-: you put 2 squirt per nostril and it alleviates allergies..
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haa: i am geting on long term disability and have dual coverage for private ins
jody-: it is rx.... Flonase is the name. there are no generics
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HelloKit: i use nasacort & echinacea right now
jody-: I used echinacea but had too many sinus infections.... so I use this now to prevent them
Pei: Ok get this. My chair is 31 and a half inches long, and the lift on the bus is 30 inches.... so we had to take it in and get a new axle for it, i'm pissed, i want at least an angle, they said they can get a 4 degree angle at the most and it will make it 29 inches long.... Right now i have a loaner chair... it's weird.... :(
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HelloKit: i cant get anything rx right now - my parents ins. stopped covering anything 4 allergies a few months ago, & now i dont even know if theyll cover me since im 18
jody-: oh... it isn't very expensive because my brother doesn't have insurance and he can afford to pay for the rx
Pei: OH! AND! In the lunch line at school i went through and got my meal, then going around the other side of the railing there is part of the wall that sticks out and i can't get through, so i had to go through the kitchen at school.
jolene: HelloKit, can you have your doctor give you samples of Flonase?
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HelloKit: actually i take that back - they wont cover any of our rx's anymore. theyll only cover certain pharmacies & none of them r in our town
jody-: that's a good idea jolene.... see if you can get a sample
* Pei is pissed :(
jody-: Oh Pei.... cheer up kiddo
jolene: Pei, is the school doing anything to make the area you use more accessible?
haa: my garage is full of broken down junk which seems to go with disab
* jody- hugs and kisses Pei
jody-: hey... iwiW is that you Mims?
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Mimi: yup :o)
Mimi: ping me
Mimi: having problems
jody-: seems like it
HelloKit: Does anyone have any suggestions for things that others have brought up?
jody-: it took me 10 min to get on... all lines busy
jody-: I missed some of it.... like what
Pei: they aren't
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Pei: i think i'm gonna sneak in the school one night and take a hacksaw to one of the railing legs, then i could get through.
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HelloKit: lol pei
* HelloKit slaps ChanServ around a bit with a large trout
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Pei: be sittin there, security comes 'Son, what are you doing?' LOL
jolene: I've thought of trying yoga to try to relieve some of my pain. Has anyone used yoga?
jody-: I have....
jolene: thanks, Moooooooo!
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HelloKit: hey mr. ircop, how come chanserv's playin w/ the topic again?
haa: insurance might be a good future topic
jody-: yes.... how to kill agents
Mooooooo: i reset it since it has been very stable
Pei: OH AND! I was at wal-mart today riding in the motor cart and some clerk came up to me and said this exactly 'Excuse me partner, i'm with the store. Is there a reason you are riding in that?' I about killed him.
Pei: Mooooooo is an IRCop
jody-: Pei.... sometimes people make mistakess...
jolene: I could go on for days about insurance. Sure you want a topic like that--everyone on the channel will have horror stories galore!
HelloKit: lol unbelievable - the only time they care who's using it, its someone legit
* Pei was gonna link his server here.... but they wanrt
jody-: I've been stopped for my handicap parking tag....
Pei: HelloKit: yeah :)
Pei: jody-: ack!
jody-: one very threatening letter to the town stopped that real quick...
haa: jody there must be a way to kick thier butt
jolene: I really resent people who look down their noses at me because my handicaps are not apparent to the naked eye.
Pei: jody-: :) :) :)
jody-: they even threw out a ticket that I DID deserve... :)))
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HelloKit: some old lady cussed out my bf 4 using the sticker & getting out of the car, when he was coming around to help me out!
Pei: jody-: Oh BTW, you PROMISED ME THOSE HEXES! :)
jody-: same here jolene
jody-: later Pei.... they can't be used in anger...
jody-: how are you doing Kiddo?
jody-: Mimi is really having problems...
jolene: Texas has decided to take away free parking for the handicapped as of Sept 1.
jody-: what???!!!! it figures....
* Pei made an enemy at school right away yesterday. And i
Mooooooo: how come?
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jody-: Pei.... did you report it?
Pei: jody-: oh you know teachers, i did report it and my friend was a witness, they said 'We need to see it to do anything!'
jody-: hi Mimi....
Mimi: hi :o)
jody-: what about your parents?
HelloKit: moo does amc affect yer hands?
Pei: Bah, i didn't bother with that
Mooooooo: yep, sure does
jody-: hey Mimi.... did you read the letter?
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Mimi: yeah Jody, great letter :o)
HelloKit: good, well not good, but i have a q 4 u
jody-: so????? what was your impression
Pei: i pulled my armrest off and said 'you wanna make soemthing of it' i should have hit him right there, but i would have been suspended :(
Mooooooo: okay :o)
Mooooooo: not if they didnt see it
jody-: Pei.... learn to control your temper!
Pei: Mooooooo: HAHAHA LOL
Pei: jody-: i try, i really do, but when someone whacks me on the back of the head i have a hard time....
HelloKit: i get these blisters on my hands, i think i told u bout them - like sweat blisters. do u think they could be caused by the fact that my hands r closed up most of the time?
Mooooooo: i doubt it
jody-: but Pei.... you made the comment
haa: get a peper ggun jody
Pei: jody-: he made the comment, i told him to get a life
jolene: bye y'all
Lao-tzu: Jolene: Changes in blood pressure and hormonal changes could be the trigger for migraines. Other triggers could be a shift in the endocrine system associated with menstruation or taking contraceptive pills. There is also a known genetic component, which itself could be the overdevelopment of excitatory faculties of the sensory syetm. Bottom line as far as I know is acceptance of pain without an external cause in the form of tissue damage becau
haa: Carly do you soak your hands
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jody-: be right with you Pei
Fenicia: Hi :)
HelloKit: i used 2 soak them in salt water - but it was a pain 2 stand over the sink & it didnt really do that much good
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haa: hey carly how about aa little bubble bath for your hand and then lots of vitamine e cream
Lao-tzu: Carly, what has the doctor said about it? Skin specialist?
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HelloKit: every dr. weve gone 2 has just laughed us out of the office
Lao-tzu: Even when the blisters are visible?
haa: hello moooooooo
HelloKit: they dont believe it even happens
HelloKit: they brush it off as a on-time occurence
Mooooooo: filled blistered or just air blisters?
HelloKit: filled, like sweat or water or something
Mooooooo: no clue
HelloKit: oh well :oP
Lao-tzu: I'd try a skin specialist (again?)
Mooooooo: I would call Dr. Dean
haa: docs are wierd
jody-: I like my doctor... he's gorgeous too...
Amazin1: bye all.... :-)
HelloKit: yeah like that dr, that still tells his patients 2 drink a glass of beer at night when theyre nursing
Mooooooo: bye Denise!
HelloKit: lol jody
Lao-tzu: by Amazin1
jody-: that's an old wives tale.... they used to think it was good
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HelloKit: tell that 2 this guy
haa: i really believe in vitamin rich cream